Cure for Cade

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Juneau, AK
Cure for Cade

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Cade was diagnosed with hereditary spastic paraplegia. Follow his story as we work to defy all odds!

11/01/2026

Happy Halloween 2026

10/29/2026

we are so excited to try out these shoes

10/20/2026

If you have a nonverbal child, you know what a big deal this is.

10/12/2026

Six months post-gene therapy. 🤍

We’re seeing progress in Cade’s communication and mobility, and every bit of it means the world to us. But we’re also learning to live with the uncertainty of what comes next.

Our hope is that this treatment will stop the progression of SPG50, but we won’t know the long-term outcomes for years. I never want to share our journey in a way that gives other families false hope or makes promises we can’t make.

I’m just a mom sharing my son’s experience, one step at a time. We can celebrate progress, hold onto hope, and still be honest about what we don’t know.

Happiness equals life minus expectations. Cade is happy. He’s growing. And we’re grateful for every bit of progress along the way.

We’re still here, still hopeful, and still believing in a brighter future. 💙

08/21/2026

8/20/26 life with SPG50. Hereditary Spastic Paraplegia Type 50

06/30/2026

Coming up with creative ways to encourage movement is a nonnegotiable, because the strength that he’s building leads to an increase in his quality of life.

06/29/2026

There were days we didn’t know if this would ever be possible. Today, Cade is out on the trail, and every step feels like a gift. If you’re parenting a child with a disability or mobility disorder, don’t underestimate how much hope can carry you through the impossible. ❤️

06/23/2026

This trip to Dallas did not go as planned…

06/12/2026

10 weeks post gene therapy. We are seeing progress in compression.

06/08/2026

Thank you .adventures for inspiring our adventures

Address

Juneau, AK

Website

http://www.cureforcade.com/, https://gofund.me/d348d19d

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