16/08/2025
Meet the Alpha-gal(Syndrome) Family
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We met each other via a mutual friend years ago.
We are neighbours, fellow farmers, suppliers and now have the same tick borne disease. The only person free from this disease in this photo is our daughter, H.
Although we are categorised as āAlpha-gal Syndrome a.k.a. mammalian allergyā sufferers, our symptoms are all different. Close to no reaction to extreme reactions. No EpiPen needed to carry EpiPen all the time.
It was a long day sharing our experiences and realising we have so much in common growing up which was somewhat scary! Our kiddo made a bestie and it was a great day with laughters and tears.
Sadly, despite all our efforts to not expose any allergen to Carla, she later had reactions. However, sheās determined to continue this family gathering.
Sheās such a warrior, I cannot imagine how hard and scary itād be being fume reactive & not knowing which exact allergen is giving her a reaction. I really wish her system settles down so that she can enjoy her life fully without any fear.
I will post more informative post re AGS but for now itās time to hit the sack š“