05/29/2026
Fen has been hospitalized since last Sunday, for the 3rd time. He’s had 6 brain taps. On Wednesday, he underwent an MRI, where we learned the makeup of his brain. And it’s good news!
Fen has regular, old, “standard” hydrocephalus. The huge white part of the image is fluid. He only has a thin layer of brain matter around the outer edge. He is an exceptional shunt candidate, once he gets about a half pound bigger. Unlike Timmy, Fizz, and Jane, who all have more complex hydrocephalus, Fen’s hydro is very straightforward. This makes treatment decisions pretty easy! If medications don’t work to manage his symptoms, placing a shunt should provide him lifelong relief.
Because Fen has needed a tap so frequently, we’ve kept him hospitalized like we did with Timmy. I’m going to launch a flash sale in the next week to help fundraise for Fen’s bills, including his MRI. We have some fun merch in limited quantity so keep your eye out for the announcement!