03/11/2026
This is what CMT is doing to my feet—and why it affects so much more than how they look. 🖤
Sharing this is embarrassing for me, honestly. But if I’m going to raise awareness, I want people to understand what these changes actually mea
n.
The high arches—called pes cavus. This is where the arch is unusually high and doesn’t flatten normally when you put weight through your foot. It can concentrate pressure under the ball of the foot and along the outside edge. Standing and walking can become painful, and the foot and ankle can be less stable.
The curling toes. CMT can weaken the muscles unevenly, changing the balance of the pull around the foot and toes. Toes can develop a clawed or hammer-shaped position instead of sitting straight. Mine are curling more, and seeing that change in your own body is upsetting.
Bent toes can also rub against footwear and create painful pressure points. Finding shoes that fit comfortably can become a struggle.
The rock-hard skin under the balls of my feet. Repeated pressure can make the skin thicken into calluses. That hard skin is something I’m really struggling with. When the area you need to put weight through is already uncomfortable, every step can become an ordeal.
Weakness and difficulty lifting the feet. CMT can weaken the feet, ankles and lower legs. Some people develop foot drop, making it difficult to lift the front of the foot clear of the ground. That can mean catching your toes, stumbling or lifting your knees higher to avoid tripping.
Changes in feeling. The nerves that carry sensation can be affected too, causing numbness or altered feeling. Having less sensation doesn’t mean someone cannot also experience pain.
And then there’s the effect of walking differently, trying to keep your balance and compensating for weakness. It takes extra effort and can put strain on muscles and joints.
For me, the pain affects my feet, calves, shins, thighs, hamstrings, hips and back. It can be fu***ng monumental. A photograph cannot show you that pain, the exhaustion, or the concentration it sometimes takes just to move around.
It also cannot show what it does to your confidence when you start worrying about getting to work, managing the day or staying on your feet. Everyone with CMT is different. These problems don’t happen to everyone in exactly the same way. But this is why “sore feet” doesn’t come close to describing what I’m living with.
I want to keep my independence. I want to run my shop and enjoy the things I’ve worked so hard for. Watching my mobility change is frightening, and some days it really gets us down.
So I’m showing something I’d normally hide, hoping it helps people understand—and helps someone else feel less alone. 🖤🤍