07/10/2025
Our daughter Grace has recently been diagnosed with FOXG1 syndrome.
FOXG1 is a neurological disorder where she’s missing genes in her brain. The genes that she is missing are some of the most important genes, these genes signal the body’s movement, growth and development.
This means that Grace may never walk, talk, sit, or even eat on her own. One of the most common side effects is having seizures and developing epilepsy.
There is an amazing parent/-led foundation in America working wonders and developing a treatment called Gene Therapy. If the treatment goes to trials and is successful. It could mean that Grace and all children with FOXG1 around the worlds futures could be changed.
We are raising money to help the treatment go to trials and give Grace the future she deserves 🙏🩷
https://www.justgiving.com/crowdfunding/grace-cheal?utm_medium=FA&utm_source=CL
Join the Mission to Bring the FOXG1 Gene Therapy to Children Worldwide! Support The parent-led FOXG1 Research Foundation.