05/09/2023
I really liked the lake. I liked boat rides with wind on my face. I loved being at the lake with Laeni. I especially liked lake turtles.
They tasted good. Kinda like lizards 🦎. Island food. Frogs 🐸 were fun to catch. Mom called me a frog maimer. These are the things I dream about when getting transfused.
A week ago I felt so weak that I almost gave up. But I just wasn’t ready. Mom and Dad took me on another road trip. I’m at Texas A&M getting more blood. I feel good with blood and bad without. People here are nice. I think I heard that I’m going home today. Yay! I sensed my mom and dad in the hospital today. I’m looking forward to being home and hunting that big lizard in the wood pile.
Dad had a dream last week about me and Laeni. In his dream he placed his sandwich on the side table by the couch. I left his sandwich alone. Not a lizard. Not really interested. In his dream, Laeni ate it. Of course. I miss Laeni. Dad said in his dream that Laeni and I were playing together and she got on top of me, in a fun play way, holding me down to the ground. Dad said he woke up from the dream and checked on me. He thought I was gone. Mom knew. She said Laeni made me come back to her.
This will be Sas’ last post. She is no longer regenerating enough red blood. Her platelets are almost none. Either the babesia or the t-cell lymphoma are either taking over the spleen and or the bone marrow. We spent an hour in discussion with the doc after the docs rounded on Sas’ most complex case. Any test we do at this point, aside from not changing an outcome, could cause immediate death because of lack of platelets. We are spending the next hours to days with her. To keep her comfortable and happy. We won’t let her suffer. As her pack cell volume (red blood) drops, she cannot oxygenate. Her respiration increases to try to get oxygen to the organs, but there’s no blood. When this happens and Sas becomes uncomfortable, we’ll let her go back to play with her siblings. Until I see them all again. I miss them every day. I will explain all of this to Sas so she knows and isn’t scared. She’s such a smart soul. My heart is broken. Too young.